We are home. JJ is doing so good. The sweetest thing was when we got home he COULDNT wait for cal to wake up from His nap. Kept asking to go wake him up. Was the sweetest thing ever. Of course they were back to fighting like usual within minutes of cal getting up ....but it just confirmed that they do Soo love each other. Usually it's cal loving on JJ, so sweet to see the tables turned. Happy mom heart moment :)

I'll update more soon. Thanks so much for the prayers . I know they've made a difference. We know God is with us, watching over us. Even though we can't comprehend why, this is all in HIS hands and has a purpose.

Hugs and love

Alright guys, things are looking up. I think we may go home tomorrow. Part of me thinks they know we are ready to go home when we ask to go home. They want to make sure we are comfortable with it all and asking to go home would be a sure sign. So I think we are ready. We know what we need to I think, or at least have a solid grasp, and know how to fluctuate change things (insulin, sugary snacks for low sugars, etc)  if needed. We totally need more practice doing the poke and pricks but that will only come with time.

JJ Has been a champ. We have issues when his sugars are low. He gets so upset about the prick for his sugar test but this is when we need it the most. When his sugars aren't low he takes all of it like a champ. Like doesn't even blink. It's crazy how much his numbers, well low numbers, effect him. He's been dealing with this for a while I think. They actually have a test that can tell you his averages for the past 3 months. He was a 9, normal is like a five, but some kids who are recently diagnosed get like 15/16s on this test--- so in a sense we caught it early or at least early enough to not have had any serious complications. And again, I'll shout it to the roofttops... God was and is completely in control. There is no way I could have figured this out without Him giving me the life experiences He did, and the weird uneasy feeling/intuition  in my heart that just sort of arrived on Monday. It's weird... Looking back it was almost an out of body experience as I began to peice the clues together. I actually asked joe to bring home a blood glucose monitor from target that day . They were sold out and the pharmacist at his store assured him rhat JJs behavior was likely normal for his age... But I remember telling him 'she's wrong. This isn't normal'. Since I didn't have the ability to test his blood on my own i made that dr appointment and we found out there. I can't remember if I said it but the day we found out his sugars were 575 and Normall range is less than 120. There was such a tug on my heart to just get this figured out. God was totally pulling me along , putting one foot in front of the other, not letting me talk myself out of taking him in even though I did think I was maybe over-reacting.


Joe was amazing as well. He told me on the phone ' Sooz, if you think something is wrong take him
In. I've learned not to not trust your intuition. I support you taking him
In if you feel like you need to' well that support got us there... So huge props to joe!!! Too much lined up too perfectly to not think that God had a hand in all of this!!!


Back to his progress with insulin... When he eats his body breaks that food down into sugar and insulin carries that sugar to the cells. Now that he's getting insulin (his body isn't producing much or any on its own) his energy levels have been through the roof sometimes! His favorite post food/insulin injection activity has been going to the parking garage and running up the stairs, and riding down the elevator. I kid you not. He loves it. Like thinks it's the best thing ever. I think he could do it for an hour if I let him.

Anyways, when he has done this though then he usually ends up with a low afterward ... Because his body is able to burn more sugar in his blood because of the insulin/there is a demand by the cells for it, and insulin we are giving him is providing that door to get the sugar into the cells- so he burns through the sugar ...  almost too many insulin doors for the sugar to get into the cells so he burns through the sugar fast---then he is left with little sugar in his blood resulting in a low. So that is sort of why this all can fluctuate. If he's more active then he'll need less insulin- but at the same time activity levels of kids are hard to predict. Will he want to climb the stairs 3 times or 10? Hahaha so is food intake. So being in the hospital is getting a grasp on how all
Of this works.

Crazy right?

In a nutshell though Joe and I feel like we am done crying about it and ready to take this on!!

Writing this pretty tired. We are still in hospital. JJ has experienced some insulin lows which means the dosing isn't quite right. When he's low he's super hungry, and gets very sad whiny and fearful of everything. I'm hoping we can go home tomorrow. It's really all dependent on them feeling good with the parameters of how much insulin to give, and also the Drs etc feeling like we understand enough to be able to handle it on our own with him.

I understand it all I think, the how's and whys, but I am still having a hard time with the pricks and pokes - especially when he does.

That's about all I have the energy to text on my phone right now. We see all of your texts and feel the love. We will reply as we can. Hugs and love.

JJ is doing good. They are working to tighten up the range numbers a bit and figure out exactly how much insulin he should have for how many carbs he eats.

We went for a walk, colored in the play room, and took a shower. I think my thank you gift to everyone here will be a zen coloring book for parents!! There was none to be found when I wanted one so bad!! Hahaah

After the shower JJ said he was ready for a finger and tummy pokey. I was so surprised. The last one was dramatic to say the least. Praise the Lord. He was ready and brave. It was my turn to try and it took me two times :( but he did awesome. He said I'm ready to be brave mom. Bless his heart. We are waiting for the tummy pokeys (one is a long acting insulin he will take every night before bed, pharmacy is prepping it ) then this guy is going to pass out I think. He so tired and just mom, I keep waiting to be brave for the tummy pokeys. He has definitely had his ups and downs as any 4 year old would so he is pooped. Just so amazed at his strength tonight.

I have a big book of diabetes lying in front of me with scary things like 'if a seizure or complete loss of consciousness occurs, it's usually necessary to give a shot of glucagon. If no response in TEN TO FIFTEEN minutes, may need to call 911' may need to?!!?after 10-15 minutes?  What the? This is mind boggling and I'm exhausted but scared to go home, like I might mess up or something, but also know we need to get this down so we can  help him to continue to thrive and be the amazing awesome boy he is.

Keep praying. Hugs and love to you all.

We learned blurry vision can be a sign too. I ask JJ, he have you had blurry vision? Has it been hard to see? Like at the patk yesterday?

JJ: ya mom, it is hard to see. Sometimes I get sand in my eye at the park and it's hard to see

Hilarious moments.

Then there are the heartbreakers moments too.

We are watching commercials....

Mom I really want the paw patrol plane, a jet, and some candy, lots of candy for Christmas.

:( I don't have the heart to tell him....not without some tummy pokeys bud, not without some tummy pokeys. :(

I'm sitting with JJ pumping for Bradley as I type this so excuse the typos :)

JJ is doing good. Had the IV Lock removed, taking the stickies off was the worst part. He is on iPad enjoying the expensive airplanes we promised to buy him on his flight simulator app for being so brave!! Ha! Darn apps with in purchase options!

Anyway i know a few of you have asked  how I knew something was up. By Gods grace, no joke,  I was able to put all of the peices together just yesterday. As soon as it added up I made a dr appt, we had the last appt yesterday.

The sign I saw were:

Excessive thirst - he drank 3 water bottles full of water Yesterdat park, then asked for more when we got home.
Peeing at night -crazy amounts just over the last few days. He wet the bed too... So not like him.
Lost 3 lbs. -only reason I knew this is new use he obsessed with calling out the numbers on the scale when he steps on. 5-1-7 (51lb 7oz) quickly became 4-7-3 etc.
He's always been super crazy about snacks and literally having to eat or get super sad/lethargic/whiny

I know God has a hand in all of this.

One of the main reasons I sort of alerted myself to this was because I college I babysat for a family . The young boy had similar symptoms as JJ. At the time the parents didn't know it, and they told me months later after they had moved. He used to drink a ton at night and then Pee a ton at night too. They told me in case he woke up etc.

Then a dear friends niece recently was diagnosed and it all got my wheels turning.

Thanks the Lord I had those past experiences and heard about my friends niece otherwise I may not have put it all together.

God is totally in control. Our nurse happens to be one of JJs friends' mom from the childcare at the gym.

So lots of good and things to be thankful for along the way.

We are still digesting our future but really just trying to understand how to keep him thriving.

He had some lunch and sugar numbers are back up which means more 'tummy pokeys' soon. Prayers for comfort

Alright you guys... You are probably here because you are concerned about JJ. Thank you much for your prayers. He is doing well and has been stable. Don't let that statement worry you though bc he never really was comatose or anything. We caught it Easrly. Anyway, He has had one injection of insulin and hasn't needed anymore, yet, thank the Lord. He mostly is upset about the iv lock in his arm and thankfully has been open towards eating the hospital food.

Right now his injection numbers are lenient in a sense, which seems to be good. We are learning more about it as the day progresses but in a nutshell as of now he needs one long acting insulin injection a day, and then other injections based on his current blood sugar needs- which will be checked before meals; and then also we need to calculate his injections based on what we plan to feed him and he eats. This is the more difficult part. Right now the endocrinologist is recommending he recieve on unit of insulin for every 45 g of carbs he eats. This is where I mean it's more lenient. Some kids need one unit per every 15 g of carbs they eat , etc. it's all individual based. This number could change too as the days go on and we figure out more about how his body is handling sugar, the insulin etc.

I'll post more about our diagnosis story when I can.

Hugs and love to everyone praying for us!