Alright guys, things are looking up. I think we may go home tomorrow. Part of me thinks they know we are ready to go home when we ask to go home. They want to make sure we are comfortable with it all and asking to go home would be a sure sign. So I think we are ready. We know what we need to I think, or at least have a solid grasp, and know how to fluctuate change things (insulin, sugary snacks for low sugars, etc) if needed. We totally need more practice doing the poke and pricks but that will only come with time.
JJ Has been a champ. We have issues when his sugars are low. He gets so upset about the prick for his sugar test but this is when we need it the most. When his sugars aren't low he takes all of it like a champ. Like doesn't even blink. It's crazy how much his numbers, well low numbers, effect him. He's been dealing with this for a while I think. They actually have a test that can tell you his averages for the past 3 months. He was a 9, normal is like a five, but some kids who are recently diagnosed get like 15/16s on this test--- so in a sense we caught it early or at least early enough to not have had any serious complications. And again, I'll shout it to the roofttops... God was and is completely in control. There is no way I could have figured this out without Him giving me the life experiences He did, and the weird uneasy feeling/intuition in my heart that just sort of arrived on Monday. It's weird... Looking back it was almost an out of body experience as I began to peice the clues together. I actually asked joe to bring home a blood glucose monitor from target that day . They were sold out and the pharmacist at his store assured him rhat JJs behavior was likely normal for his age... But I remember telling him 'she's wrong. This isn't normal'. Since I didn't have the ability to test his blood on my own i made that dr appointment and we found out there. I can't remember if I said it but the day we found out his sugars were 575 and Normall range is less than 120. There was such a tug on my heart to just get this figured out. God was totally pulling me along , putting one foot in front of the other, not letting me talk myself out of taking him in even though I did think I was maybe over-reacting.
Joe was amazing as well. He told me on the phone ' Sooz, if you think something is wrong take him
In. I've learned not to not trust your intuition. I support you taking him
In if you feel like you need to' well that support got us there... So huge props to joe!!! Too much lined up too perfectly to not think that God had a hand in all of this!!!
Back to his progress with insulin... When he eats his body breaks that food down into sugar and insulin carries that sugar to the cells. Now that he's getting insulin (his body isn't producing much or any on its own) his energy levels have been through the roof sometimes! His favorite post food/insulin injection activity has been going to the parking garage and running up the stairs, and riding down the elevator. I kid you not. He loves it. Like thinks it's the best thing ever. I think he could do it for an hour if I let him.
Anyways, when he has done this though then he usually ends up with a low afterward ... Because his body is able to burn more sugar in his blood because of the insulin/there is a demand by the cells for it, and insulin we are giving him is providing that door to get the sugar into the cells- so he burns through the sugar ... almost too many insulin doors for the sugar to get into the cells so he burns through the sugar fast---then he is left with little sugar in his blood resulting in a low. So that is sort of why this all can fluctuate. If he's more active then he'll need less insulin- but at the same time activity levels of kids are hard to predict. Will he want to climb the stairs 3 times or 10? Hahaha so is food intake. So being in the hospital is getting a grasp on how all
Of this works.
Crazy right?
In a nutshell though Joe and I feel like we am done crying about it and ready to take this on!!
So impressed with you guys! JJ is one lucky kid to have you as parents.
ReplyDeleteSo impressed with you guys! JJ is one lucky kid to have you as parents.
ReplyDelete